I am glad that I am still here to make a second contribution to Chris’ blog.
Though I’ve realized that I am like an old junker car, the kind when you bring it in for a check-up or inspection, the mechanics cluck their tongues and say “the good news is it’s not dead yet. But you have to work on the brakes/air filter/main bearings/etc. to make it road-worthy.” Then they console you with the adder “But it has good torque…”
My cancer has been a) fomenting liters of fluid build-up in my lungs, b) interfering with a kidney, c) producing prodigious amounts of mucus and spit, d) etc. “But your blood is better….”. Actually, these things sound like plumbing problems, and the solutions were from the plumbing repertoire; namely drains and hoses and periodic suction pumps. Maybe I’m more like an old junker washing machine.
So January was a rough month. I lost a lot of weight again quickly, and had trouble eating. Probably due to cold (yes, I know it was an easy winter), and the succession of junker plumbing repairs.
I spent way a lot of time in hospital rooms, leading to these thoughts:
In a hospital bed, the room’s
dust of despair, bleak sadness
an ache behind the eyes,
A pallor of mind.
The room haunted
by death and pain?
It is the best medical care,
The nurses are cheerful
But used to it.
And after rhyming:
Lying in a hospital bed
the dust of despair blinds
behind the eyes, a dread
aching pallor of mind.
From wraiths of death and pain?
It is the best medical care,
the nurses are cheerful and humane
but immunized to despair.
Not sure which version I like better.
Hoping of course that Oscar Wilde’s observation would hold true, namely (or wordly) that by describing my reaction to hospital rooms, the reaction will go away before my next hospital stay.
But I have been thinking about Oscar’s truism: “Nothing survives being talked of”. It became codified in my worldview when I was in my late 20’s. I remember clearly stating, “I will never go to Lagos, Kinshasa, or South Africa.” Not two years later I found myself in the Congo for a 9-month stint, and two after that flying into Johannesburg. Once I noticed this personal phenomenon, I realized that merely saying I wasn’t going to do something automatically increased the odds that I would in fact do it. Oscar’s saying seemed to explain this phenomenon.
But of course it is not true on several levels. On the other hand maybe it is true for important things. I think really important things, like aspects of relationships, or experiences of emotions, are almost impossible to describe in English, and I suspect in any language. So perhaps what is true about Oscar’s insight is that talking of important things is doomed to failure, since it is so devilishly difficult to express what you really mean. So such things do not survive being talked of.
Now in my 60’s, my thoughts turn to Goethe’s “For there is nothing either good or bad, but thinking makes it so.” I think Goethe implies that if I think up good and positive narratives of my adventures with cancer, then I might make my adventures be good and positive. I’m still thinking about that.
Getting back to January, it was hard to lose muscles the second time, the first being my tumor’s initial onslaught on my body announcing its existence. I worked hard to get healthy and strong after biweekly chemo treatments allowed me to regain a handle on life with my tumor. My wife and battle buddy and I exercise cultishly (we go to crossfit), and I am back near as strong as I was before January. But I’m not there yet, and I know that because in hockey almost anybody can lift my stick and steal the puck. Pre-cancer, that never happened; and last December I had reached near that level of play again. But my game now is marred by opponents’ ability to steal the puck with ease. And I’m not even talking about essential skills such as skating and shooting – you can guess my level of ineptitude in those aspects of the game.
At least my arms and legs are not the sticks that they had shrunk to in January. Interestingly, at our last meeting my oncologist said that Dana Farber and some institution in California had become aware of some possible relationships between muscle mass and cancer and cancer treatments. The idea would be a clinical trial or study to determine if having more muscle mass is correlated with more positive outcomes in patients with cancer.
Early in my cancer career we attended a Dana workshop on Alternative Therapies that might augment standard cancer treatment. Exercise was highlighted as the most effective Alternative Therapy then known. Exercise increased positive outcomes 30-35% in patients undergoing regular cancer treatment programs. Good diet and nutrition were second most effective, at around 20%.
I’m pretty sure communicating with your tumor via your vagus nerve was not on the list of Alternative Therapies at all. In my previous contribution to Chris’ blog I outlined a line of reasoning for, and possible strategies to open lines of communication with my tumors. I’ve not made much progress. I think I’ve been able to identify some sensations and body states that might involve my vagus nerve. I tried sending messages to my tumors encouraging them to shrink. The mother tumor perhaps has done that, to the extent that CT scan reports don’t even mention it anymore, and CT reports seem scrupulous at describing only what is there on the screen. No conjectures about why the dog didn’t bark in the night are to be found in CT reports. But if it is not mentioned, I think that is a good sign.
The little seedling tumors that are spread around my abdomen are getting bigger a millimeter or so in a two-month span. At the last meeting my oncologist said that the tiny seedling tumors are actually what he is most concerned with (a little tidbit that was a bit of an eye opener to me. I had heretofore concentrated my attention on the mother tumor).
About this time I realized that most likely my tumors don’t speak English (otherwise I could have bombarded them with the Oscar Wilde treatment). I have to learn tumor language, which is probably steroids and hormones and blood biochemicals. Maybe they have their own form of messenger RNA twitter. Through meditation I have worked on getting my center of focus to locate somewhere else besides eye level. I think I can get it down to my diaphragm through breathing awareness, but the diaphragm doesn’t seem like a particularly communicative organ. So now I’m trying to go up the chain of command to the brain stem and cerebellum, which I believe do send messages via the vagus to the area where the tumors are. If I could only learn how.